Celiacs Helping Celiacs

… I am only one, but I am one.  I cannot do everything, but I can do something.  And I will not let what I cannot do interfere with what I can do!  ~Edward Everett Hale

 

 

Perhaps you have Celiac, or a gluten-sensitivity, or know of someone who does.  How can you contribute to making the lives of the gluten-intolerant just a little more convenient and healthier?  Certainly, you could make a donation to a Celiac Research Center so they can continue the important work they are doing, but there are also other ways of helping.

Following are a few suggestions to get you on your way:

1. Spread the Word. Don’t be embarrassed about your diagnosis.  Have a dialog with others, including sharing your symptoms and if they are experiencing similar symptoms, suggest they get tested.  Share useful tips you have learned.

2. Contribute monetarily to a leading Celiac Disease Research Center of your choice (see Resources” for a list).

3. Contact a Celiac Research Center near you and request to participate in a research study – humans are needed!  Here is a current one: http://celiaccorner.com/celiac-gluten-free/7021/

4. Have a Fundraiser:

Think about doing something you are good at (i.e. cooking, a sports activity, arts & crafts), and coordinate a fundraiser.  You can have it at your home, school, in a park, at a local restaurant or other business.

5.  Purchase products from companies who support celiac research by donating a percentage of their proceeds.  Following are just a few:

Enjoy Life
Foods By George
Glutino

Jones Dairy Farm
Jules Gluten Free
Kinnikinnick
Pamela’s Products
Riceworks

 

6.  Consider signing a food allergen petition – visit our page: http://celiaccorner.com/current-petitions-relating-to-food-allergens/

7.  Volunteer at your local support group meetings, and if you do not volunteer, try to attend!

8.  When you visit a restaurant that does not have a GF menu – politely suggest they consider adding one, or at a minimum, adding allergen info to the menu. Also suggest they contact either the Gluten Intolerance Group to inquire about restaurant training: http://www.glutenfreerestaurants.org/ or the National Foundation for Celiac Awareness: http://www.celiaclearning.com/

9.  Contact and thank mainstream manufacturers whom have added gluten-free products to their product line, so they will consider adding even more (see list of manufacturers).

10.   Email or write to DUNKIN DONUTS and ask why they aren’t, at a minimum, offering a lactose-free product, and also suggest they consider offering a gluten-free option. Can you imagine one of the world’s leading coffee & bakery establishments, not considering people with food intolerances?

11.  Contact and thank STARBUCKS for offering lactose-free options & the few snacks that are gluten-free, perhaps suggest they add a bakery item.

http://www.starbucks.com/customer-service/contact/nutritional-information-form

12.  Contact DOMINOS and suggest they offer a gluten-free pizza that is safe for Celiacs (i.e. dedicated Gfree cooking area)

http://www.dominos.com/home/index.jsp

13. Contact and thank Pharmaceutical companies currently conducting studies/trials and continue to follow their progress:

Alvine:  http://www.alvinepharma.com/index.asp?page=126

Alba Therapeutics: http://www.albatherapeutics.com/

Avaxia Biologics: http://www.avaxiabiologics.com/ibd.html

14. Contact airports and suggest they add more vendors offering gluten-free menus, and more GF snack items at kiosks.http://en.wikipedia.org/wiki/List_of_airlines

15. Check out these wonderful organizations which hold a variety of events around the US to raise money and spread education and awareness of Celiac – see if there is something going on in your area:

- Celiac Awareness Tour: http://www.celiacawarenesstour.com/

- Kicking 4 Celiac: http://www.kicking4celiac.org/

Have a suggestion?  Please comment below!

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On August 31st, 2011, posted in: Celiac and Gluten Free Blog by Paula
One Response to Celiacs Helping Celiacs
  1. Having found out that someone in my family was diagnosed, you have helped me understand Celiac. Excellent Information! Thank you.

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