(April 2013) Rice Consumption Patterns of Celiac Disease Patients, set up by Tricia Thompson, a dietitian who specializes in celiac disease and Brian Jackson, PhD of Dartmouth College. The results of this survey will show just how much rice is eaten by gluten-free consumers (with the concern of arsenic levels in rice, this is important). Take Survey HERE (ends April 24th 2013)
(April 2013) National Foundation for Celiac Awareness and The Jefferson Celiac Center are conducting a SURVEY related to “ learning what recommendations patients with celiac disease receive from their physicians regarding family member testing. The study investigators hope to use this information to improve screening strategies for celiac disease.” Take Survey HERE.
Alba Pharmaceuticals Recruiting Celiacs for Clinical Trial in the US & Canada- click here to see if you qualify: http://celiaccorner.com/celiac-gluten-free/7021/
STUDIES/SURVEYS NOW CLOSED:
(January 2013) National Foundation for Celiac Awareness Launches Gluten-Free COLLEGE STUDENT National Survey to gain more insight into gluten-free life on a college campus): http://www.celiaccentral.org/celiac-disease-in-the-news/Celiac-in-the-News/161/vobid–9281/?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+Celiac-Central-News+%28Celiac+in+the+News+from+the+NFCA%29 - CLOSED.
(October 2012) Canadian Adults with Celiac needed to participate in an on-line study. Please contact A. Justine Wilson, PhD Student at University of British Columbia, email: wilsonaj@interchange.ubc.ca - CLOSED.
ATTENTION CELIAC (OR NON-CELIAC) TEENS HEADING TO COLLEGE! Celiac Disease Group at Lucile Packard Children’s Hospital at Stanford currently recruiting participants for a clinical initiative to improve quality of care for adolescents who are transitioning to college with Celiac Disease. Also recruiting teens headed to college without Celiac Disease to serve as controls. Visit their Facebook page for more details & to enroll: www.facebook.com/CeliacDiseaseLPCH<http://www.facebook.com/CeliacDiseaseLPCH - CLOSED.
National Foundation for Celiac Awareness (NFCA) & Beth Israel Deaconess Medical Center’s “Family Members of Persons with Celiac Disease” Study. Seeking Participants NOW: http://celiaccorner.com/celiac-gluten-free/family-members-of-persons-with-celiac-disease-wanted-for-research-study/ - CLOSED.
(Chicago Area) Seeking Patients with Celiac Disease for Study at The University of Chicago Celiac Disease Center (must be a current Univ. of Chicago Medical Center patient, call to schedule appointment 773.702.3572). Seeking Patients Now thru 7/31/2012 (selected participants to be paid $50): http://celiaccorner.com/celiac-gluten-free/seeking-patients-with-celiac-disease-at-the-university-of-chicago-celiac-disease-center-for-study/ - CLOSED.
National Institutes of Health’s Clinical Trials.gov
http://clinicaltrials.gov/search/term=(celiac+disease)+%5BCONDITION%5D
U.S. National Library of Medicine – National Institutes of Health’s PubMed.gov http://www.ncbi.nlm.nih.gov/pubmed?term=celiac
HEALTH ALERT: New line of DOMINO’S “Gluten-Free” Pizza available in the US is NOT safe for Celiacs and those with a severe gluten sensitivity due to high risk of cross-contamination.
Also check HERE for the lastest FOOD RECALLS!
Below are various petitions currently underway throughout the US, relating to the safety of celiacs/gluten-intolerant, food allergens and healthy eating. Click on the link to the applicable website, read the complete petition and then it is ultimately up to you to decide if you wish to support the cause.
- Disney Channel: Stop Bullying Gluten-intolerant Characters (began 5.16.13)
- Finalize Standards for Gluten-Free LABELING (began 10.2.12) – PLEASE CONSIDER THIS! A few simple steps to register and sign … goal is 25,000 signatures by November 1st, 2012. UPDATE (11.1.12 – the required 25,000 signatures were received – way-to-support!!)
- Get Actress & Celiac Jennifer Esposito back to work, or release her from her CBS contract … began October 2012
- Ditch Amber - Sign Petition if you want NFCA’s “Amber” designation to be eliminated (reminder Domino’s pizza recently received “Amber” designation from NFCA, though there is a high risk of cross-contamination and therefore unsafe for celiacs and the gluten-intolerant) – NOW CLOSED (See Update below)
UPDATE: 5/18/12: The Celiac/Gluten-sensitive community spoke and the NFCA listened. Read NFCA’s statement suspending the Amber designation for restaurants http://www.celiaccentral.org/nfca-statement-7937/
- Encourage the Girl Scouts to sell an allergen free cookie (began 5/8/2011)
Target location: Nationwide
Note: If you are aware of other petitions relating to food allergies/intolerances & healthy eating, kindly forward details and we will consider adding to our list. Submit to: info at celiaccorner dot com
Though we certainly are in support of changes that would benefit the celiac and gluten-intolerant community, not all petitions listed necessarily reflect the views and opinions of CeliacCorner or any of our sponsors.
